Wednesday, May 15, 2013

hannah the helmet girl...

That's her super hero name! (thanks for the idea Lindsay!).

She's had it for one week and 2 days...

She's our helmet girl...our physical therapy girl...our acid reflux girl...

Poor girl...she's a fighter though.

She sleeps in the helmet, plays in it, eats in it, laughs in it and cries in it...

She cries a lot in it.  She no longer likes her car seat, we think it's because of the helmet.  She used to cry mainly when she was hungry or tired...now she cries more...

And it breaks this momma's heart.  Joel is much stronger with all of this...he'll put it back on her when I don't think I can. 

The helmet is light purple and covered in butterflies, it's really cute.  It squeezes her little cheeks and makes her sweaty and stinky...she wears it 23 hours a day, 7 days a week.  We are allowed to take it off during the day to clean it and let it air out, both the helmet and her head.  I really like that part, because even if it's only for 15 minutes I love her smile when it comes off...

For the most part she does great with it...she is so strong and resilient...I'm so proud of her!

The helmet therapy is because she has plagiocephaly...she also has torticollis of the neck...she started physical therapy for that yesterday...and it exhausted us all...

It turns out her neck problem, which she has had since birth, is worse than we thought...it turns out that some of the movements she has been doing, that we thought were cute and just how Hannah did things, need to be corrected...

We have a long road ahead of us, but I am oh so thankful for the doctors, physical therapist, and certified orthontist who can help her.  We're on the right track!  She's going to get all better...even though she sometimes screams when I stretch her at home! 

A helmet, a bunny and a sweet little girl!


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